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  1. #1
    Senior Member piroska's Avatar
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    Default Doctors and Stuff

    Husband has always had an issue with his sugar levels, hypos, hypo unawareness and always een a lean small eater.
    But since he lost his sense of smell (which is where you get flavour from) he lost interest.
    And of course the bad habit of messing with insulin and therefore crusing on bugger all food to keep it down.

    So he was 53kg 3 weeks ago.
    Now he's 51.

    Really it's anorexic. He's so thin I said he'll be dead by my birthday if something isn't done.

    Saw a doc finally, what a mission that was. They tried to fob him off onto diabetic nurse, who told me my request for glucagon was not to be cause it's "heavy stuff".
    Idiot.

    Saw doc, she ordered blood tests, then marked the lot as "OK".
    never mind his %saturation, hemoglobin etc is all low. He's anemic. Not as bad as he was cause I've been giving him B vitamin/iron pills for ages.
    But still...

    Asked her for some of that supplement stuff, yet to find out if he gets any.

    Making him eat...and protein.
    Eggs and milk, meat, peanut butter, mussels etc.
    Not letting him have cake, biscuits, 2 min noodles which he tended to do before.

    Hard work, cause he can't taste anything, still resists having the sugar levels 8-10. Which is what hospital wanted him to do years ago when he had his nasty hypo and got brain damage.

    But my god he's thin. I can almost put my hand right round his collar bones, he has no bum anymore, just bones, and starting to see his eye socket bones.

    So sick of battling doctors, if I could afford to go back to Auckland I damn well would. Before he dies.
    Ex-pctek

  2. #2

    Default Re: Doctors and Stuff

    That sounds bloody terrible, watching him waste away like that and getting no professional help. I suppose something like Complan is out of the question?

  3. #3
    Senior Member piroska's Avatar
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    Default Re: Doctors and Stuff

    Similar to Complan, I know, I asked for it.

    She said she needed to do blood tests and we needed a double appt next time. (Another week to go)
    Blood tests, sigh, he had them every 3 months for ages, they're on record, I asked did you look at them?
    No she says.

    They show nothing except low iron saturation and hemoglobin...up more, but that's the pills I have been getting him for ages.
    Which she has marked a s "OK". Uhuh.


    I got crap asking for Glucagon a couple of weeks ago, he ran out and it was weekend, just used last....couldn't get to see any doc for days, had seen a nurse earlier. So put in a ph prescription ask.
    And so get a call from diabetic nurse saying oh no, it's "heavy stuff", have to see doc. Talked over me when I said I tried and we needed it this weekend.

    I had to be nasty to get it. I said and what step over him on floor and wait ages for ambulances at $90 a pop instead?
    Among other things....

    Heavy stuff my ass. Doc said oh sorry you perceived her in a bad way, I said it isn't perception.

    For those who don't know : Glucagon metabolises a certain type of fat round the liver into glucose. Very rapid effect, and then you give the person something to eat after.

    Side effects can be some nausea and rapid heart rate, none of which, in 41 years of having it, he ever had or has from it.
    Beats being dead....hypos are like running out of oxygen, once glucose is gone you don't have long.
    Ex-pctek

  4. #4
    Retired old codger kenj's Avatar
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    Default Re: Doctors and Stuff

    Hi piroska, have you been to see what help is available here in Napier. I don't know whether they can do anything to help you, but your bloke, as you say, needs help. Maybe worth a try. The entrance to their office is just inside the small mall in Dickens St. Opposite DMP Cafe.

    Hope this helps..
    Ken

    Diabetes Hawks Bay Incorporated,
    Level 1 Tourism House, 64-82 Dickens Street, Napier 4110

  5. #5
    Senior Member piroska's Avatar
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    Default Re: Doctors and Stuff

    Sometimes I'd like to take him up, (except that would be playing with his life, so I wouldn't) when I find him in that sort of hypo state, sugar at 0, no-one home, so close to dead he...well I won't detail his bodily consequences, but it can be freaky and messy.

    Stuff him in the car, drive up and plop him on the floor and say there you go.

    How many hypo people do they get walking in there?
    None.
    They get fat type 2's needing dialysis and such.

    Bet she has never even used Glucagon on someone, I've done it, at a rough estimate about 6000 times.
    Ex-pctek

  6. #6
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    Default Re: Doctors and Stuff

    that loss of smell may be caused by other conditions that are complicating things?

    https://www.healthline.com/symptom/l...sense-of-smell

    Have a look here: https://nutritionfacts.org/topics/diabetes/ - You might get something to help.

  7. #7
    Senior Member piroska's Avatar
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    Default Re: Doctors and Stuff

    He has seen many diabetic specialists, nurses and dieticians over the years, he's had type 1 for 50 years.
    None of them are much use, they change his insulin type, they fiddle with doses, that's it.


    An awful lot of them told him how good his levels were.
    Which made me want to punch them. Sure he doesn't have high - kidney failure, eye problems etc...but low is certainly not good at all.

    It's just in the 'can't make him, too hard basket'.
    We know that.

    he has to do it himself really.

    Never mind, anyway. I found the criteria last night, he either needs one of a number of serious diseases or a BMI of less than 18.5 to qualify. His BMI comes out at 19.5. Which is nonsense, he is a bag of bones, you can see that.

    But son said he'll pay for the supplement stuff and I give up battling the medical profession.
    Ex-pctek

  8. #8
    Senior Member piroska's Avatar
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    Default Re: Doctors and Stuff

    Quote Originally Posted by Laggard View Post
    that loss of smell may be caused by other conditions that are complicating things?
    .
    Tried the various things. Except surgery. He always had allergies, so does son. He had a poor sense of smell, so does son.
    Aging plus that means it's not quite gone, but 95%.

    He can't even smell petrol or dettol now.

    It has to be very, very strong to get a faint whiff. Son will probably end up the same in later years.

    He has polyps, it was noted in one of his hospital notes. It can be a thing with people who had allergies sadly.

    He did try to get hospital to look into it again, GP referred him, he got a note back saying, more or less, get lost, more important issues to look at.

    But politer of course.
    Ex-pctek

  9. #9
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    Default Re: Doctors and Stuff

    Have a look through the whole website, it can be a bit ghung ho'ish, But is basically scientifically sound,and I find it works pretty well for me.

    A plant based diet might be a bit to hard to accept, but I have overcome some potentially life threatening diseases with it, and in actual fact I find compared to my peers I don't have creaky joints, lack of energy and motivation etc. etc. I fell and split a ton if firewood each year, and don't feel that much different over the past 10-15 years, just slowing up a bit.(the chainsaw is starting to feel a little heavier than before.) In fact the diet has made a lot of changes to my body. One thing it does is change your gut bacteria to a more benevolent mix, which reduces inflammation, which is in really noticeable after a few months.
    I worked till 73 until I retired, and will be 80 next year and still going strong.

    I don't want to appear pushy, but I really feel your husband could benefit from this regime.

    Nutritionalfacts.org website was started because of the lack of knowledge shown by the medical fraternity of the benefits of the curative benefits of plants. They tend to be pill pushers by and large. They do have their place, but as you have found they tend to distance themselves when they run out of pills that work.

    ps stuff him full of blueberries instead if you have any growers over your way(season just about over)

  10. #10
    Senior Member piroska's Avatar
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    Default Re: Doctors and Stuff

    Quote Originally Posted by Laggard View Post
    A plant based diet might be a bit to hard to accept, but I have overcome some potentially life threatening diseases with it,
    I don't want to appear pushy, but I really feel your husband could benefit from this regime.
    Sorry but he is already anemic. There is a difference between heme iron and non-heme iron you know.
    His % saturation si low now and he's been taking iron and B pills for 3 years.

    It's hard enough to get him to eat as it is.
    Example, last night sugar was 9.3 so he says that's high, won't eat.
    I said that's what got you into this mess...and made him have 2 pieces of cheese, and some mini crackers with thick peanut butter.

    He then took 3 units of slow acting insulin.

    So at 1:34am I was feeding him emergency glucose. Then a pikelet with peanut butter.
    Got it back up to 6.8.

    This morning it was back down to 4.9.

    And he was happy with that.
    Wrong, it needs to be 8.

    All day yesterday if it was OK, he'd say don't need to eat anything.

    Considering you have to be so regimented and eat a lot with vegetarian diets - like hell.

    He's not a bit thin, he's a couple of months? off dead.
    I prefer to keep him around if possible,

    And anyway he's type 1, not 2, it's harder for them to put on weight you know.
    Ex-pctek

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